Documents

PPC Documents, Letters and Statements

• PPC Comments RE: 2026 CMS Interoperability Standards and Prior Authorization for Drugs Proposed Rule

  06/15/2026

  Comments on comments on the Interoperability Standards and Prior Authorization for Drugs Proposed Rule, expressing appreciation to the Centers for Medicare and Medicaid Services’ (CMS) for ongoing efforts to improve patient access to essential services and treatments and providing feedback on many proposals included in the proposed rule. 

• PPC Comments RE: ARHOME Section 1115 Demonstration Application

  06/10/2026

  Comments on the Arkansas Health and Opportunity for Me (ARHOME) Section 1115 Demonstration Application, urging CMS to work with the state to ensure that Arkansas prioritizes policies that will protect patient access to care during implementation of PL 119-21.

• 48 Patient Organizations Warn of Massive Coverage Losses under Final Work Reporting Requirement Rule

  06/02/2026

  48 non-profit, non-partisan patient organizations issued a statement in response to the interim final rule implementing the new Medicaid work reporting requirement provisions in Public Law 119-21 expressing deep concern that it does not protect people with serious or complex health conditions and would instead dramatically and inappropriately increase the number of people who will lose their healthcare coverage.

• Comments RE: Montana's Implementation of Work Reporting Requirements Via Proposed Rule 2026-514.1 Health and Economic Livelihood Partnership (HELP) Program – Medicaid Expansion

  05/22/2026

  Comments expressing deep concerns with the early implementation of work reporting requirements and the proposed rule 2026-514.1 Health and Economic Livelihood Partnership (HELP) Program – Medicaid Expansion and, in the interest of the health of Montanans receiving Medicaid coverage for serious health conditions, urging Montana not to finalize any regulations that will add to administrative burden and risk of inappropriate coverage loss.

• PPC Comments RE: Idaho 1332 State Innovation Waiver Covered Choice Amendment and Extension of Reinsurance Program

  05/13/2026

  Comments expressing concern that the proposals included in Idaho's 1332 State Innovation Waiver would lead to confusion, premium debt, and less benefits for patients, and urging the Departments to not move forward with the Covered Choice program.

• PPC Comments RE: Connecticut Substance Use Demonstration Extension Request
  Dear Secretary

  05/13/2026

  PPC comments supporting Connecticut’s efforts to improve access to quality and affordable health coverage by implementing pre-release services for the justice-involved population, and urging CMS to approve this proposal.

• Leading Health Organizations Urge NC Lawmakers to Reconsider Implementation of Medicaid Cuts

  04/30/2026

  Nonpartisan organizations representing millions of patients living with serious and chronic health conditions express concern that HB 696 CCS, signed by Josh Stein Thursday, puts in place new, overly burdensome requirements for people with Medicaid health insurance coverage in North Carolina.

• PPC Letter RE: Patient Priorities for Future Reconciliation Package

  04/22/2026

  Letter to congressional leadership from 44 organizations, on behalf of millions of patients and consumers who face serious, acute, and chronic health conditions, strongly urging Congress to exclude any additional funding cuts or policies that would further impact Medicaid and the Patient Protection and Affordable Care Act (ACA) in any future reconciliation package. 

• Comments RE: Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2027; and Basic Health Program

  03/13/2026

  Comments from organizations representing millions of patients and consumers facing serious, acute and chronic health conditions across the country expressing concern that the proposals included in the proposed rule would make health insurance coverage more complicated and less affordable.

• PPC Letter RE: NE Implementation of Medicaid Work Reporting Requirements via Regulation Title 477 NAC 29

  02/25/2026

  Letter from organizations representing thousands of patients and their families facing serious and chronic health conditions in the state of Nebraska urging the state not to finalize any regulations that will add to the administrative burden and risk of inappropriate coverage loss for the people we represent and noting that efforts to expedite implementation of work reporting requirements could adversely affect Nebraskans undergoing treatment for serious illnesses.

• PPC Letter to CMS RE: Implementation of H.R. 1

  02/09/2026

  PPC letter urging CMS to share additional information about the implementation of Public Law 119-21 and not to finalize any policies that will add to administrative burden and risk inappropriate coverage losses for the hundreds of millions of patients and consumers facing serious and chronic health conditions across this country that PPC members represent.

• Statement for the Record to the United States Committee on Energy and Commerce Health Subcommittee for hearing titled
  Lowering Health Care Costs for All Americans: An Examination of Health Insurance Affordability

  01/22/2026

  Statement from 34 nonpartisan, nonprofit organizations, representing millions of patients living with serious and chronic health conditions, emphasizing that any changes to existing law must not jeopardize the healthcare coverage that Americans currently have through employers, the private market, Medicare, or Medicaid. Further, patients and consumers should be able to keep their existing high-quality coverage, and any policy should not undermine quality or affordability. As the Subcommittee considers the cost of health insurance, it is essential to ground this discussion in the lived experience of patients and families.

• Statement for the Record to the United States Committee on Ways and Means for the Full Committee Hearing with Health Insurance CEOs

  01/22/2026

  Statement from 34 nonpartisan, nonprofit organizations, representing millions of patients living with serious and chronic health conditions, emphasizing that any changes to existing law must not jeopardize the healthcare coverage that Americans currently have through employers, the private market, Medicare, or Medicaid. Further, patients and consumers should be able to keep their existing high-quality coverage, and any policy should not undermine quality or affordability. As the Subcommittee considers the cost of health insurance, it is essential to ground this discussion in the lived experience of patients and families.

• Patients Need a Path Forward: 40 Patient Advocacy Orgs Urge Senate to Extend ACA Tax Credit

  01/13/2026

  40 non-partisan, nonprofit organizations representing millions of patients with serious and chronic health conditions applaud the House for advancing a clean three-year reauthorization of the Affordable Care Act (ACA)’s enhanced advance premium tax credits, and urge the Senate to act now to restore the enhanced tax credits before more individuals walk away from high-quality coverage.

• PPC Letter to the Consumer Financial Protection Bureau Opposing Interpretive Rule on the Fair Credit Reporting Act

  12/19/2025

  Letter strongly oposing the Consumer Financial Protection Bureau (CFPB) interpretive rule published October 28, 2025, stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting, as it will stifle states’ abilities to protect patients’ through medical debt reforms that are incredibly important to patients and on which many of our groups have worked at the state level.

• Comments RE “Public Charge Ground of Inadmissibility" Notice of Proposed Rulemaking

  12/19/2025

  Comments opposing the Notice of Proposed Rulemaking and urging that the Department of Homeland Security not finalize the regulation, as it will cause enormous and permanent harm to individuals with serious, chronic illnesses, including U.S. citizens, their families, and the communities which they live.

• PPC Comments RE: Maryland HealthChoice 1115 Extension Application

  12/12/2025

  Comments supporting Maryland’s proposal to reauthorize pre-release services for the justice-involved population and urging CMS to approve the proposal.

• Principles for Protecting Patients’ Access to Medicaid

  11/20/2025

  Organizations representing hundreds of millions of patients and consumers facing serious and chronic health conditions across this country ​urge policymakers to adopt the following priorities for Public Law 119-21 implementation to protect patients’ access to Medicaid.

• Statement for the Record to the United States House Committee on Ways & Means Health Subcommittee for hearing titled Modernizing Care Coordination to Prevent and Treat Chronic Disease

  11/19/2025

  Statement expressing deep concern that the continued lapse of the enhanced advance premium tax credits threatens to destabilize coverage for patients who can least afford this uncertainty, and that some policies currently being discussed as alternatives—including short-term limited-duration plans, expanded association health plans, tax advantaged accounts without significant guardrails, and other forms of non-ACA-compliant coverage—will put patients at risk.

• PPC Statement for the Record to the ​United States Senate Committee on Finance for hearing titled the Rising Cost of Health Care: Considering Meaningful Solutions for all Americans

  11/19/2025

  Statement expressing deep concern that the continued lapse of the enhanced advance premium tax credits threatens to destabilize coverage for our patients who can least afford this uncertainty and that some policies currently being discussed as alternatives—including short-term limited-duration plans, expanded association health plans, tax advantaged accounts without significant guardrails, and other forms of non-ACA-compliant coverage—will put patients at risk.

• Patients and Families Face Devastating Consequences from Congressional Inaction

  11/17/2025

  36 nonpartisan, nonprofit patient advocacy organizations issue statement urging Congress to secure an immediate solution to the expiration of the enhanced advance premium tax credits (APTCs). Millions of Americans are now shopping for 2026 health coverage and discovering unaffordable premium increases. As a result, many are walking away from coverage altogether.

• Patient Groups Warn of Dire Consequences for Patients and Families Due to Congressional Inaction

  10/31/2025

  37 nonpartisan, non-profit patient organizations issue statement in response to Congress’s failure to renew the expiring enhanced premium tax credits (eAPTCs) before the beginning of the open enrollment period in most states. Tomorrow, millions of Americans who rely on eAPTCs to access high-quality insurance will be met with sticker shock when they log on to sign up for their 2026 plan year. The stakes are especially real for small business owners, farmers, early retirees and patients living with serious health conditions who will face premiums that are now out of reach.

• PPC Comments RE: the Montana Health and Economic Livelihood Partnership (HELP) Demonstration Waiver

  10/17/2025

  Comments urging CMS to reject the Montana HELP Demonstration Waiver as Montana’s proposal to implement work reporting requirements and premiums for Medicaid beneficiaries will lead thousands of people to lose coverage and jeopardize the health of people with serious and chronic conditions in Montana.

• Patient Groups Warn: Catastrophic Coverage Losses without Congressional Action

  10/09/2025

  33 non-partisan, non-profit patient advocacy organizations issue statement in response to Congress’s failure to renew the expiring enhanced premium tax credits (eAPTCs) before insurance companies issued their premium increase notices for the 2026 plan year. Congressional Budget Office estimates suggest that 1.5 million people will lose health coverage if Congress delays acting until December.

• PPC Comments RE: New York’s Request to Terminate Approved 1332 Waiver

  10/08/2025

  Comments expressing appreciation of New York’s commitment to providing affordable health benefits to as many New Yorkers as possible, and urging the state to delay termination of the 1332 waiver for as long as resources permit. The comments acknowledge that restrictions in HR1 and the expiration of enhanced premium tax credits will dramatically reduce available funding for the state’s Essential Plan, and that the state estimates that 400,000 people currently enrolled in the Essential Plan will lose coverage.

• PPC Letter RE: Maryland Access to Care Act Implementation Delay

  10/03/2025

  Letter expressing appreciation for Maryland’s commitment to implementing the Access to Care Act 1332 Waiver as soon as possible and urging the state to consider earlier implementation if time and resources allow. The letter acknowledges that H.R.1 and the Marketplace Program Integrity rule impose unexpected burdens on the Maryland Health Benefit Exchange and those who rely on it.

• PPC Letter to the Departments of HHS, Treasury, and Labor RE: Harmful Changes to Insurance Marketplace

  10/02/2025

  PPC letter expressing deep concern about recent decisions to deprioritize enforcement of an important rule to protect patients from junk insurance and to expand access to non-comprehensive coverage, and urging the Departments to maintain the integrity of the Affordable Care Act (ACA) insurance marketplace (Marketplace), especially as we approach open enrollment.

• PPC Comments RE: Illinois Continuity of Care and Administrative Simplification Extension and Amendment Request

  08/08/2025

  PPC comments expressing support for proposals to continue managed care organization reinstatement for beneficiaries who submit redetermination paperwork within 90 days of losing coverage and acceptance out-of-state address updates from reliable sources to reduce administrative burden with the addition of appropriate guardrails to protect beneficiaries, but opposing the continued temporary waiver of presumptive hospital eligibility.

• PPC Comments RE: Kentucky Community Engagement Demonstration

  08/08/2025

  PPC comments expressing appreciation that Kentucky’s proposal will not negatively impact enrollment and urging CMS to work with the state to provide further clarity on the proposal’s implementation.

• PPC Comments RE: Maine Substance Use Disorder Care Initiative Extension Request

  08/08/2025

  PPC comments supporting Maine’s proposal to implement pre-release services for the justice-involved population and we urging CMS to approve.

• PPC Comments RE: Utah Section 1115 Demonstration Amendment

  08/08/2025

  Comments strongly opposing work reporting requirements and urging CMS to reject this proposal as it will lead to
  thousands of people losing coverage and jeopardize the health of people with serious and chronic conditions in Utah.

• PPC Comments RE: Palmetto Pathways to Independence Demonstration Request

  08/08/2025

  Comments strongly opposing South Carolina’s proposal to implement work reporting requirements and an enrollment cap for the new proposed eligibility group, as well as the proposal to waive hospital presumptive eligibility, and urging CMS to reject the request.

• Patient Community Urges Congress to Reauthorize the Enhanced Advance Premium Tax Credit

  07/30/2025

  43 organizations, representing millions of patients and consumers who face serious, acute, and chronic health conditions, urge Congress to act and include the reauthorization of the eAPTCs in legislation by September 30th. If Congress fails to act, marketplace enrollees will see their premiums skyrocket, forcing some patients and consumers to abandon the high-quality coverage they rely on to manage their care. 

• In the Wake of Senate Passage, Coalition Warns: H.R. 1 Is a Dangerous Setback for Patients

  07/01/2025

  Today, a coalition of leading non-partisan, non-profit patient advocacy organizations issued a sharp rebuke following Senate passage of H.R. 1, warning of devastating coverage losses nationwide.

• PPC Letter RE: One Big Beautiful Bill Act’s Impact on Patients

  06/28/2025

  PPC letter urging Members of the Senate to oppose this legislation as the vast majority of health-related policies included would make it significantly harder for patients to access and afford their care and jeopardize the programs which are literal lifelines for the millions of patients, their families, and survivors who continue to experience the side effects of illness and care.

• Patient Coalition Condemns House-Passed H.R. 1 for Stripping Coverage from Millions

  06/06/2025

  Today, 36 non-partisan, non-profit patient advocacy organizations issued the following response to new Congressional Budget Office estimates that the One Big Beautiful Bill Act (H.R.1) combined with the failure to reauthorize the ACA’s tax credits would cause 16 million people to lose their health coverage by implementing deep cuts to Medicaid and the Affordable Care Act marketplaces.

• PPC Letter Urging Veto of Ohio SB 100

  06/06/2025

  Letter from 15 nonpartisan, non-profit organizations urged Ohio Governor Mike DeWine to veto Senate Bill 100, a bill authorizing the sale of farm bureau plans that could discriminate against Ohio residents with pre-existing conditions and leave Ohioans exposed to medical and financial harm.

• PPC Comments RE: Georgia Pathways to Coverage Demonstration Extension Request

  05/30/2025

  PPC comments strongly opposing Georgia’s request to continue with work reporting requirements and reduced benefits under the Georgia Pathways to Coverage Demonstration and urging CMS to reject the state’s requested extension of these policies for Georgia's Medicaid program.

• The Partnership to Protect Coverage Urges Congress to Not Cut Our Health Care

  05/20/2025

  PPC statement urging congressional leaders to reject cruel and reckless policies in the reconciliation package ​that would cut or terminate healthcare for millions of American families.

• PPC Statement in Advance of the House Energy & Commerce and Ways & Means Committee Markups

  05/12/2025

  PPC statement urging congressional leaders to reject cruel and reckless policies which would terminate health coverage for at least 13.7 million people, including low-income working adults, Medicare beneficiaries, children, people with disabilities, and patients with complex health conditions, and indicating that Medicaid and the ACA are not line items in a budget—they are literally lifelines for the patients.

• PPC Comments RE: Arizona Section 1115 Waiver Amendment Request: AHCCCS Works

  05/09/2025

  Comments urging CMS to reject proposal, which includes work reporting requirements, time limits and emergency department and ambulance transport copays for Medicaid beneficiaries, as it will cause thousands of people to lose coverage and jeopardize the health of people with serious and chronic conditions in Arizona.

• PPC Comments RE: ARHOME 1115 Demonstration Amendment

  05/09/2025

  Comments urging CMS to reject this proposal, which includes work reporting requirements and time limits as factors in eligibility review,  as it will cause thousands of people to lose coverage and jeopardize the health of people with serious and chronic conditions in Arkansas. 

• Letter to Congressional Leadership Opposing Medicaid Cuts

  05/05/2025

  PPC letter to congressional leadership, on behalf of millions of patients across the United States, expressing deep alarm and strong opposition to the devastating Medicaid cuts being considered for inclusion in the FY25 budget reconciliation package.

• PPC Comments RE: Patient Protection and Affordable Care Act; Marketplace Integrity and Affordability

  04/11/2025

  Comments urging the Department not to finalize the proposed rule which will place consumers at risk without any reasonable basis to do so. In the name of program integrity, the Department is issuing these proposed regulations that, by its own account, will deprive up to two million people of coverage, while quietly reinstating the agents and brokers it previously suspended due to program integrity concerns.

• PPC Comments RE: Ohio 1115 Waiver Demonstration

  04/07/2025

  Comments urging CMS to reject Ohio’s proposal to implement work reporting requirements for Medicaid beneficiaries as they will lead to thousands of people losing coverage and jeopardize the health of people with serious and chronic conditions in Ohio. 

• Statement on Behalf of Members of the Partnership to Protect Coverage to the House Committee on Education and the Workforce Health, Employment, Labor, and Pensions Subcommittee RE: Hearing on: “A Healthy Workforce: Expanding Access and Affordability in Employer-Sponsored Health Care"

  04/02/2025

  Statement urging the House Committee on Education and the Workforce to reject bills which negatively impact the quality and affordability of healthcare for patients, including the Association Health Plans Act; the Telehealth Benefit Expansion for Workers Act; and the Self-Insurance Protection Act and, instead, partner with organizations like the 27 signers to identify opportunities to expand affordable, accessible, and adequate healthcare coverage for patients and their families.

• Patient Groups Urge Caution Around Disruptions to Critical Safety-Net Programs

  04/01/2025

  Statement expressing deep concern that a call for rapid and large-scale reductions-in-force (RIFs) across government agencies, which is already underway in some divisions, has the potential to undermine program operations that are lifelines for the patients the organizations represent. Disruptions to social safety-net programs including Medicaid, Children’s Health Insurance Program (CHIP), and others, can have a devastating impact on patients with chronic illnesses who depend on these services to access specialized care, financial support, and other necessary resources. PPC urges the administration to consider the long-term impacts and lasting harm to patients that could come from implementation of these proposed changes.

• PPC Letter to Governors RE: Rejection of Medicaid Cuts and Extension of eAPTCs

  03/25/2025

  Letter from 30 nonpartisan, non-profit organizations urged governors of Alaska, Arizona, California, Kentucky, Maine, North Carolina, New Jersey, Nevada, New York, Ohio, Pennsylvania, and Wisconsin to reach out to their congressional delegations to communicate the importance of rejecting any cuts to the Medicaid program and extending the enhanced premium tax credits.

• PPC Letter to Governors RE: Extension of eAPTCs

  03/25/2025

  Letter from 30 nonpartisan, non-profit organizations urged governors of Colorado, Louisiana, Michigan, Iowa, Nebraska, and West Virginia to reach out to their congressional delegations to communicate the importance of extending the enhanced premium tax credits for ACA health insurance.

• 22 National Patient Organizations Voice Concerns to Department of Health and Human Services Removing Key Opportunity for Public Voice

  03/06/2025

  Statement expressing deep concerns regarding sudden move by HHS to remove the notice and comment process for a wide array of agency actions which will significantly limit transparency into agency action that has a direct impact on patients accessing essential health services.